Grief and physical artifacts

I opened a tiny ziplock bag today and rubbed a tiny bundle of Riley’s hair against my face. I inhaled deeply and hoped to find his scent. It wasn’t there. I then pondered how I could fasten the clump of blond strands to my own hair. I thought I might be able to attach it to a barrette or a bobby pin. A blond streak in my brown tresses. The only physical things I have from him are these little bundles of hair tied with ribbons and a collection of baby teeth. Whenever I get these little bags of hair out of my box of special things, I am reminded of that fact. Hair and teeth are the only physical artifacts from his body and this life. I suppose there is also the box of his ashes that lives on a shelf in his bedroom. But the ashes are unrecognizable. I can’t look at the ashes and see him. But the hair -- his bright yellow hair -- is seen in all of the pictures I have. And the teeth are in those photos, too. At least in the photos when he let his guard down and smiled without caution. Smiled with teeth. And then with this reminder that there are the only bits of my son, my mind whirs and sputters as it tries to make sense of his physical absence from his clothes, his bed, his room, the dining table, our car, his shoes, the couch, my arms. 

Grief and After Life

I've watched the first season of After Life on Netflix, and it is probably the most accurate depiction of grief I have seen. My fear for the second season is that things get better and he finds happiness, blah, blah, blah... But hopefully it will be more like real life, that if he does fall in love, he will carry on grieving his dead wife. You can't replace a person with a different person. Because grief would be part of that new love or new marriage or new baby. Things are complicated because grief and love and life are complicated. It's all messy and I'm a mess and my shattered self will always be a mess, even if it doesn't look that way when you see me walking through the grocery store or hiking in the hills with my big, jovial family. Life after a significant loss is like a bone that has healed incorrectly. There will always be pain. Even as I love my other children and love my husband, I will ache for my missing son until I turn to ash. If you decide to watch this, have tissues nearby. And I don't think the trailer does it justice.

Riley Run 2020 is canceled

Given the current pandemic, this should come as no surprise. It's a disappointment, none the less. We'll be back next year. It will be the last Riley Run. Here is the message from our amazing run coordinators:

Hello Riley Run supporters!

Unfortunately, but not surprisingly, we were notified by the City today that the Riley Run has been cancelled due to concerns around the coronavirus. While we are disappointed that we won't be able to officially gather to honor Riley on the 19th, we don't want anyone's health to be jeopardized.

 
Along the same lines, we won't be printing shirts this year. If you have donated and would like a refund, please let us know and we will get your money back to you quickly. If not, your donations will be sent to Camp Taylor and Children's Heart Foundation in Riley's name as they are every year.

If the timing works out and it is more safe to gather, we would love to reconvene maybe without the run, but we will play that by ear at this point.

Thank you for continuing to support Riley and his family. We have a wonderful community and we feel lucky to be part of it.

Megan and Cassandra

In the meantime, think of Riley on April 2. It would have been his 17th birthday. Thank you to all who signed up for the first time, thank you to all who have been supporting us year after year. We are grateful for your love.

Suzanne, Riley's mom

Grief and the little sister

It was a year ago last Sunday that they cut her out of me. A silver scar across my abdomen is the proof. I barely acknowledged the pregnancy, so it was equally strange to have a baby cut from my body and handed to me. A daughter, the doctor said. And there she appeared around the paper divider and into my line of vision with a mess of brown hard smeared across her head.

And now she is here already a year old. She lives in our house. She sleeps in Riley’s room. She holds Riley’s things while she nurses in the chair next to his bed. She reaches for the things hanging on his walls when I change her diapers. She is the sixth chair at the dining table, once balanced with four school-aged kids and two adults, only to be completely unbalanced after Riley died. His empty seat. His voice not heard. His laughter gone. And now there is a high chair at the table. It is not a replacement. Only a different kind of chair holding an entirely different child. Even though all of the seats are full, the table is still unbalanced. It will always be unbalanced. And I will always be unbalanced, even though my arms are full right now.

She cannot replace him. I never thought she would, but it was my fear. That somehow holding her and hugging her and nursing her and reading to her and feeding her and bathing her and loving her, that somehow, somehow she would rub away his memory that is seared into my heart -- my Riley-shaped scar. But that isn’t the case. I didn’t know what it would be like, but it isn’t like buying a new gallon of milk to replace the empty gallon of milk or getting a new candle after the wick is gone on the other. I haven’t stopped thinking about him. He is in my thoughts just about every waking minute of every single day. Maybe more intensely now. Now that I spend so much time in his room surrounded by his things. As I remember him at one month old, six months old. As I think of his weight and remember marveling at his tiny body, my first baby born.

Sometimes I call her Riley by mistake. Sometimes I wish she were him and that she would grow at high speed and become the nearly-17-year-old young man that he is supposed to be. But most of the time, I try to focus on appreciating her. It’s a messy, imperfect approach to living in a seemingly impossible world where she is here and he is not. It’s not her fault that her 11-year-old brother died. It’s not her fault that she was born. Yet here we are.

She is goodness in an abyss of pain. So I work on telling myself that at every chance. I want to make sure that I flip to the things that she is, instead of the things that she isn’t. I want to strengthen the neural pathways of love and appreciation for this being that has come into our lives unexpectedly. Here are some of my appreciations: I appreciate that she is an excellent sleeper; I appreciate that she is generally good natured; I appreciate that she will happily sit and play on her own while I make dinner; I appreciate that she will contentedly be in the carrier on my back while I do the things that need doing; I appreciate that she lets me hold her; I appreciate hugging her; I appreciate that sometimes she hugs me back. I appreciate that she continues to wake up even when my mind says that she will not. I appreciate that she didn’t die the night she choked on her dinner and was rushed to the ER. I appreciate feeling her weight and her warmth on my lap and in my arms and across my chest. I appreciate seeing her torso rise and fall on the monitor. I appreciate her tiny hands that reach for mine. I appreciate her eyes that look for me. I appreciate her cries that indicate her aliveness.

When I’m holding her and hugging her, I feel slightly less sad. This doesn’t mean there is less grief. It just means that the grief is being temporarily combated with this 19-pound force of love. It’s an internal battle sometimes to let it feel like love and not betrayal. But I hear his voice saying, “Love her like it’s me because she’s part me because she’s half of you.” It’s flawed 11-year-old logic, but I think what he means when he whispers those words into my head is that it’s okay to love her because he loves her, too. Of course he does. He was an amazing big brother. And she is his tiny sister, who already knows his name and waves when she sees his picture.

Grief and sales pitches

Riley Run 2020! To get this year’s shirt, register by March 19. To register, send email to rileyrun1101@gmail.com OR leave a comment saying you want to sign up. #only2runsleft #wewanttoseeyou #bringafriend #centralmiddleschool #sequoiahighschool #carlmonthighschool

Grief and parents of San Carlos

Parents, this is for you... Many of you know Riley’s story because you follow my blog (even though I haven’t written in a few months). Since his death, you’ve learned about him and his love of Tabasco. You’ve also learned about a mother’s suffering through my words and stories. You might recognize me at Trader Joe’s. You might have seen me walk around school with a hat pulled low over my eyes. I can tell you that while most of the time, I move through the world with trepidation, the day of the year when I feel the most alive is the day when I’m surrounded by people who are thinking about Riley with me. That feeling happens at the Riley Run. That’s when I look out at all of the faces (maybe with tears in my eyes), and feel my boy’s essence in all of the faces looking back at me. There are only two Riley Runs left — only two. Come. Bring your kids. You don’t have to run. And maybe we’ve never met or maybe we haven’t seen each other since his memorial. Or maybe you only learned about his death after the fact. And maybe I wont recognize you (or your kids because they’ve grown up so much since 2014), but come anyway. To be honest, marketing the Run is my least favorite thing because it makes his death feel like a sales pitch. But I need you to come. It’s only $25, and it benefits some worthy charities. But those couple of hours fill my broken mama heart for a little bit. Can I count on you? It’s April 19, at 4pm. To learn more or register, send an email to: rileyrun1101@gmail.com.

Grief and peers wanted

You knew him... You were in the same classes; you played baseball on the same team (or on opposing teams); you played music together; you ate lunch together; you walked the same streets; you played at the same parks. Come remember him with us at the Riley Run (no running required). April 19, 2020. For info or to register: rileyrun1101@gmail.com

Grief and Riley Run 2020

The Riley Run is coming (No running required!) Save the date... April 19, 2020 #rileychallenge #wewanttoseeyou 

Grief and stones

Originally intended for the garden, I couldn’t actually put them in the garden because I feared rain and sun would make them fade over time. Already fearing Riley’s memory would fade with time, I needed these to stay vibrant. So, since Riley’s memorial five and a half years ago, these stones have lived in a wicker basket in the corner of my living room. Today, I decided to use them to cover the cement patch in front of my fireplace... holding each one, reading it as if for the first time, and placing them where they can be admired. I don’t think I’ll want to repair the cement patch any longer. I wish I’d thought of this sooner. Can you see yours? #rileyforever

Grief and sibling trauma

As we walked home from the frozen yogurt store last week, my son pointed out some Halloween decor at the end of our street that he liked. There were some scruffy black cats and pumpkins and a scarecrow. My neighbors were offering a gentle version of the holiday that's become anything but gentle. When I asked what he liked about them, he basically said that they weren't upsetting like some of the other stuff. When I asked him what he meant, he had a hard time articulating what he was feeling, but it was obvious to me. So I helped him make sense of his feelings as best as I could without putting words in his mouth.

He is also traumatized by the holiday gore lining our streets.

He's seen postoperative pictures of Riley. And he lived with his brother's scars -- the six-inch scar down his torso and the holes from the stitches and the puncture wounds from drainage tubes. All of those scars were familiar to him because that's all he ever knew of his brother who endured six open-heart surgeries during his lifetime. He is familiar with Steristrips holding skin together over wounds. He is familiar with bandages from blood tests. He spent time with his brother in the hospital when he was a baby. He lived with his brother and the aftermath of those long hospitalizations for all eight years that he was lucky enough to have an older brother. So seeing the undead around town with bloody incisions and gaping wounds and bandages is upsetting. He knows what those are in real life. He doesn't want to be reminded of them on the streets of our town. It reminds him of the trauma in his own family. It reminds him of his dead brother. I'm sure he imagines what his brother looked before he died. And afterwards. Those images probably look like the worst of what Halloween offers.

The bloody clown emerging from the gutter is not on display this October. And I have avoided the house near school, the one that incorporated their son's imaginary death in their decor last year. As a result, I don’t know what decorations, if any, they’ve put out this year. But I’m very much on edge as I move through town this time of year. And apparently, I'm not the only one. Still Standing just published a slightly altered version of my piece from last year. Read it here.