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Saturday, October 18, 2014

Lullabies for R

In the last few days while R has been on life support, friends and family have left him voicemail messages that we have played for him. Others have thought of songs that have been meaningful to R over the years and have played those songs for him. Two different friends mentioned "Fireflies" by Owl City. It was the theme song to so many Wednesday adventures with friends. And long before that, it was a song that R sang so often that I recorded him singing it. This recording is from November 2009. R was six years old.

As a side note, I cannot even begin to tell you the nightmare of opening one's laptop to find out that the world has decided that your son had died. To receive condolences for a death that has not taken place. In the future, please visit R's blog for accurate information regarding his journey.


  1. Anonymous5:22 AM

    Oh, Suzanne! :-( I know it can't take away the nightmare, but when I saw what was happening on your FB wall, I wanted to post over and over again for people to STOP! I also wished that I had your login/password, so I could go in and delete all those comments before you saw them. I am so, so sorry. After the initial horrific jolt of seeing the FB post that started it all, I decided it wasn't true.
    I have been sharing your Riley updates on my FB wall, sharing them
    in person -- there are dozens and dozens of people here in Georgia praying for Riley. Someone told me they started a prayer chain for Riley that after one day had 400 people praying for him.
    Please know that there are many, many people who have had only his precious life in their thoughts and prayers.

  2. I love that you are playing songs and messages from people to him. Maybe play the World Series games next to his bed (radio broadcast) or on the tv... (of course, cause i'm me, i suggest also putting on some mozart and brahms, etc!) much love and always thinking about you guys.

  3. Anonymous8:05 PM

    Thank you so much for sharing that beautiful video! I'm so struck by Riley's amazing eyes - so deep and so kind. I pray everyday for Riley, for you and for the rest of his family. One step at a time. Riley is strong, so strong!
    - Elizabeth Dameron-Drew

    1. He does have gorgeous eyes (I'm not partial at all...). Thank you for your continued support. xxoo

  4. Anonymous9:46 AM

    We are thinking and praying for you all, this video is special, thank you for sharing. Coach Brian from Sea Wolves

  5. Anonymous12:56 PM

    All of my strength, hope, and prayers are showering over Riley today and always. He has such an army of supporters out here, you can't imagine. Virtual hug, my dear friend. -Jayne