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Thursday, October 12, 2023

Grief and milestones

Photo credit: Jina Morgese, Ember & Earth
I hemmed and hawed. It would be our 10th wedding anniversary, then a few weeks later, it would be my 50th birthday. These are big milestones. Weighted. They are time markers. They are accomplishments. They are heavy with grief. I wanted to honor them, though. 

Attorney Friend, who now lives near the west coast of Florida, had offered to keep the four-year-old for three nights while we acknowledged these days, just the two of us. We jumped at the opportunity. We had only had one night away from the four-year-old since she was born. It was the night after a bear broke into our vacation rental. Our college-aged daughter was fortuitously visiting, so we left the small one with the big one and we drove away. When we got there, we screwed plywood over a smashed front door, cleaned up bear poop, made nail boards to deter other bears from getting too close to our house, and drove soiled rugs to the dump so that our tenants could move back in. 

So we would be in Florida. We would have an alternate reality for three nights. One in which we had childless lives. I rented a hotel room on the water in Sarasota, a short walk from St. Armands Circle. There would be warm water to swim in, white sandy beaches to walk along, and tables at restaurants to eat at that didn’t include a high chair and a small voice singing “Let it Go.” There would also be cocktails and dresses and late nights staring at the stars and into each other’s eyes. 

And I wanted to have our photos taken to commemorate it all. When I told Attorney Friend my plan, I couldn’t articulate why I wanted photos. “Why wouldn’t you want them?” she asked, as if the answer was obvious.

At the time, it wasn’t obvious for me. It was just a feeling. Or I just hadn’t found the words to articulate it. But I wanted framed photos on the wall that documented our love, the years we’ve held each other through joy and death and birth and graduations.

Photos have been difficult since Riley died. So many things have been difficult. The idea of smiling was difficult. The idea of smiling so that someone could capture it in a photo felt paralyzing. How could I smile? How could I feel joyful? I certainly wouldn’t want anyone to see the smile or to see the joyful photos because I wouldn’t want anyone to think that I’m done grieving. I’ll never be done grieving. And if your child hasn’t died, what I’m saying might be a difficult concept to grasp.  

But I still wanted that photo. I realized I wanted it because I want to make a conscious effort to honor the good as well as the pain. The pain is easy. The good is much more challenging, though not less deserving. I would need to let my guard down, though. And I figured a photo of the two of us would be easier than a family photo of our lopsided family where someone will always be missing.

I sent an email to a Sarasota-based photographer. It said, “Our 10th wedding anniversary was 8/3 and I'm turning 50 on 9/15. I have shied away from photos since our 11-year-old son died in 2014. That said, I'm hoping to be able to relax and just celebrate our relationship. And I'm hoping you can capture the love and not the pain that is part of who we are.”

I had to share about Riley because I need to live authentically. To not share it would be to deny all of the grief that now lives in my DNA. And it would be easier if she knew. I wouldn’t need to pretend that I wasn’t struggling. Because I would be, especially if she didn’t know. And in the moment, it would be harder to explain the tears that are always just below the surface.

“It would be an honor to photograph you and your husband, and I thank you for sharing your story with me,” she replied. 

And as soon as I confirmed the date and time of our photo shoot, I began questioning the decision. Anxiety built and I started worrying about dumb stuff, like what I would wear and if I’d look old. 

When the day of the photo shoot finally arrived, we’d already been at our hotel for two nights. We’d had time to swim and nap and see the Barbie movie. That day, we went to lunch and on our way back, we stopped at the Daiquiri Deck and had afternoon slushies. I had two – it was happy hour after all – and it was coffee-flavored and tasted like boozy coffee ice cream. The bartender gave everyone jello shots. I pushed mine to Adam while a football game blasted on the large-screen TV over the bar. 

On our tipsy walk back to the hotel, I dragged my feet through the surf and stumbled and giggled and slurred my words. As Adam napped, I went to the ocean knowing this was my last chance for an afternoon swim. As I watched hundreds of silver fish dart around my legs, I did some math and realized that it must be getting close to her arrival. When I got back to our hotel room, I only had 30 minutes to shower, dry and style my hair, do my makeup. It was probably just as well because I didn’t have time to fret or second-guess my outfit.

When we got to the lobby, she smiled at us. “You guys look amazing,” she said, which I imagine she says to all of her clients. 

“Thank you for coming. I’m really nervous,” I said as my voice broke. 

“It’s going to be okay. We’re going to focus on the love between the two of you,” she said.

“It’s just that pictures are hard for me since my son died,” I said, as I waved my hands in front of my eyes so that tears wouldn’t smear my mascara.

And for the next 40 minutes, she had us hold hands and kiss and walk and stand in the water. Adam spun me around and dipped me and I wanted to weep at the enormous love I feel for him. He has loved me on all of the days. And he “knows that nothing – not dancing or laughing or drinking or orgasms – will change grief. A temporary reprieve is just temporary. Grief is always coursing through my veins. Always will be.”

At the same time, so is love. And now I have these beautiful photos documenting it.

Thursday, June 15, 2023

Grief and effort

A child's hand pushed the bathroom door closed -- loudly. I feel this from the other side of the wall and I am awake. This is my alarm seven days a week. As we approach the summer solstice, this alarm is earlier and earlier each day. I roll toward the clock and know it will be earlier than I want it to be. My eyes open. It is 6:17 am. Chirping eases its way through the slider and into my ears. My lids fall shut, I roll onto my side, then pull the duvet up enough to cover my eyes and side of my head.

As I wait, an image appears in my head. I’m running. 

I've been running in my dreams. Fast. Long distances. Marathons. Legs effortlessly gliding across concrete and payment. I can feel the ease of moving as my legs stretch from front to back and my arms swing in sync. The breeze flows through my hair and flaps the sculpted edge of my black shorts. The effortlessness of it is what I keep going back to. 

Because my dream running is nothing like my actual running. In real life, I lumber. Trot. My arms go numb as I unconsciously bend them too close to my torso and reduce circulation. It requires tremendous willpower, this running. Especially when pushing a stroller. But I can run. One step, one block, then another and another. It's powerful to go four miles, six miles. For Riley’s birthday this year, my husband and I ran 11.5 kilometers – one for each of Riley’s 11.5 years. I always love the run after it's done. But never during. It’s just hard. Despite that, I vow that I will run 11.5 miles in honor of his 21st birthday next year.

It will be very hard. Everything has been hard. Since Riley died. 

There is another clunk as the child closes the door to the bedroom that she shares with Riley’s things – his stuffed penguins and picture books and lego creations and clothing. My finger presses the power button on the monitor and it comes to life just as she turns on her overhead light. I see a striped zebra, two pink and white unicorns, a cat pillow, Riley’s green dotted duvet. I cannot see her, but I can hear the turning of library book pages. 

Are things as hard as they were last year, two years ago, five years ago? As I wonder, I am transported into our family minivan on our way home from the grief group we took Riley’s siblings to. In the group, they draw pictures of Riley, write messages to him and put them in bottles, talk to other children who also lost siblings or parents or other important people in their lives. They also play dress up and laugh and eat cookies. I ask them how grief feels for them. “Sad, sometimes,” they say. 

“For me, it feels like I’m wearing a heavy cape. It’s hard to move. It’s hard to do anything. Because everything feels so heavy,” I say.

But now I’m running effortlessly in my dreams. I’m not sure if I'm running away from something or towards something. Maybe it's neither.

Just then, the handle on my bedroom door rattles, then opens. She steps across the threshold and pushes the door closed. “Good morning,” she whispers, as her hand gently cups my face. My eyes open. She’s wearing a pink party dress and holding one of the unicorns from her bed. “I was talking to Riley and he said he would like me to play with his marbles.” I think of the coveted tin of marbles he bought with his allowance shortly before going to the hospital that last time.

“We will, sweetheart,” I say, as she wanders over to dad’s side of the bed. 

I can’t help but wonder if my subconscious is pointing out that I can move again, that I am moving. Volunteering at my daughter’s preschool, coaching writers, editing manuscripts, sending queries to agents, applying for jobs. Even though I didn’t think it was possible, I am living and grieving, grieving and living. I would not say it’s effortless. But I’m doing much more than I ever thought I’d be capable of. I’ll probably grapple with this for a long, long time. I squeeze my eyes and wetness drips onto the pillow. Then I throw the duvet back and push myself out of bed.

Tuesday, November 29, 2022

Grief and The Question

The question was already rumbling in my stomach when my thoughts rose into consciousness this morning. I rolled from one side of the bed to the other as the uneasy feeling lingered. My husband had already gone to a meeting. I inched to his side of the bed, rested my head on his warm pillow and waited. Waited for the right answer to appear.

The sun had yet to color the sky, but I could sense movement from the other room. The preschooler was awake, needing the bathroom. “I had a thought that turned into a dream,” she said, as I tucked her back into bed. “What was that?” I asked. “Me getting into the car to take dad to the airport with you.” I smiled at her as I pulled the blanket around her shoulders. “That’s a nice dream,” I said, "but dad isn’t going to the airport for a long time and so you need to go back to sleep." As soon as I got back into my room, she was sitting up, waiting for it to be time to get up for real.

Even as I showered, as I dressed, as I pressed my foot into the gas pedal, I was still wondering about the question. And the answer. You see, I was going to talk to a woman I went to graduate school with that night. She had read all about Riley’s hospitalizations and surgeries when I wrote about him more than a decade ago. I cannot even recall the last time I saw her, probably at graduation. Or shortly after at a party at her house in San Jose. I can’t remember if she was at his memorial. If she was, I certainly haven’t seen her since then.

But when we talk on the phone, I will say hello. She will say hello. Then she will say, “How are you?” And I have no idea how to answer that question, especially when asked by someone I haven’t talked with in so long. Someone who hasn’t witnessed the howling, the blood-shot eyes, the twitchy version of myself that exists when I leave my safe bubble at home, when I venture into the world. The half-eaten version of me, even though I look normal on the outside. Or normal enough. The mom of a 3-year-old.

This woman didn’t witness all the months when I didn’t leave my bed. And after that, when I didn’t shower or comb my hair and wore the same thing for six or seven days in a row because I didn’t know how to get dressed. The woman who cut off all of her hair to look ugly, hoping to match how I felt on the inside. When we talk, this woman will hear the fast-forwarded version of me. The one that can talk on the phone, the woman who has taught creative writing and who founded a literary magazine in grief’s wake. The one that lights up talking about narrative arcs and creating three-dimensional worlds.

And all this thinking about the different versions of me since Riley died in 2014 makes me wonder how I got here. How did the accumulation of time and space from Riley’s death allow me to do those things, to get to the place where I can wonder how I should answer that question. Early on, that innocent question felt so offensive. It doesn’t anymore, and when I’m at the checkout counter, I can say, “Fine, thanks. How are you?” But wondering about it in the context of this pending phone call feels splintered. And strange because I am different from before Riley died. And I am different from the time just after Riley died. And I’m different from before the baby was born. I’m still broken, like a bone fracture that wasn’t set and the malunion impairs function longterm. I’ll always be broken, impaired. But I’m also other things. And I won’t necessarily cry when I talk about Riley.

As I downed a hot cup of tea in the moments between scratching things off the to-do list, I figured it out. When she asks the inevitable question, I will say, “I’ve been wondering how to answer that question all day.” Because it’s the truth.

Tuesday, October 18, 2022

Grief and meaning

Riley's death took eleven years, but we saw it and feared it and anticipated it from the moment he was diagnosed as a newborn. His eighth anniversary is October 20, and in trying to understand the passage of eight years without him, I had a thought the other night when I was driving. I wondered if all the joy Riley felt in life – despite multiple heart surgeries and long hospitalizations – was his attempt to teach me. Perhaps he was showing me that if he could feel joy despite what he'd been through, then perhaps I could eventually feel joy despite what happened to him.

The idea that I could live a joyful life feels improbable, even though if you spend time with me, I will let my guard down from time to time and smile with my children or my husband or a friend. People have often told me that Riley would want me to be happy. There have been times when I”ve wanted to punch those people in the face. How could they possibly know what Riley wants? I now realize that those kinds of comments are that person wanting me to be happier because it will make my grief easier for them. You can’t move someone along in grief. Everything in grief has to be innate. You cannot make someone feel something other than what they are feeling. So maybe Riley would want me to be happy, and maybe he would like that I’m still so broken all these years later. Maybe he would find my brokenness refreshing in a world desperate for Hollywood endings.

So my thought is a work in progress. It just seems messed up that the 11-year-old boy would need to be the teacher. And because humans are meaning-makers, I’ve been trying to make my thought mean something. But it's equally possible that it means nothing. Our therapist said time and again that our minds are full of thoughts, many of which are not true. This might be one of those examples. Riley’s life and death wasn’t a lesson, even though I went to a "healer" at one point who told me that Riley and I made an agreement to have this life experience together. She also told me that his final surgery failed because there was nothing else for him to learn from this life. 

So for now, I'll think of his laugh and his loud voice, his love of garlic and Tabasco, his floppy hair, his love of baseball and reading and maps. I will think about how he hummed while doing his math homework and how he really wanted to learn to play the viola when he came home from the hospital. I will also think of how it will start raining soon and everything will turn green. And I will think about how he would love that. The rest of it, I'll just keep thinking about. 

Tuesday, October 04, 2022

Grief and making space

Sand wedged itself into the spaces between my socks and my shoes as we walked along the path near Secret Beach. Sage held the leash and led the dog to the place where we play fetch as sand seeped into her shoes as well. “Can we go in the lake today?” she asked.

The air had turned cool and my daughter didn’t quite understand why I wouldn’t let her take her shoes off and run into the blue water like we had done countless times over the summer. As we walked along the beach, we noticed sticks and pinecones and shells grouped together in collages at the lake’s edges. My daughter reached for pieces of the abandoned artwork. I redirected her, asking her to find her own sticks for her own art. 

She galloped off, looking for treasures to pile and sort and push into the sand. Twigs and bark and tiny shells that we’d pretended were soup bowls and plates and forks became the foundation for our project. A row of sticks here, a group of pinecones there. She continued to gather and add to our project as I added my own touches. It morphed into a heart – most things do. One of the larger pieces of bark became a tool to flatten the sand. From there, I wrote “FOREVER RILEY” around the outside. 

“What does it say, mom?” she asked. I felt a small amount of shame as I told her what I’d written. It was just the two of us. We were collecting bits of nature and making art together, and yet, Riley was there. He’s always there. 

After I told what it said, she responded, “I’m going to write FRANKLIN over here.” She proceeded to drag her own branch through the sand to include the scratchings of one of her imaginary friend’s names.

Trying to parent my dead child and my living child is like trying to unravel strings of tangled Christmas lights. These two humans are connected and yet they are separate. In that moment, I was reminded of a piece that Jayson Greene did for the New York Times in 2020. It was about introducing his son Harrison to his beloved daughter Greta who had died 15 months before he was born. It was about imagining the language he would need to explain to his son why he has a sister who isn’t here to play with. It was about wondering when the question would come up. “We’re on his timeline,” he said. I'm on Sage's as well. 

I'm also in her reality. This childhood is hers, too, even if an 11-year-old boy is also permanently lodged into my reality. I realized that next time we play at the beach and make art, I need to write SAGE in the sand. I need to let some moments be just about her, about us. She will grow up in Riley’s shadow no matter what. But I need to make an effort to let the sun shine just for her some of the time. 

Thursday, September 22, 2022

Grief and an unexpected find

As I silenced the Dyson, I looked toward the canister layered with gray – dust, hair, topped with a fine layer of fluff. There were also a few colorful tiny beads that had fallen into the carpet fibers years ago. They were now mixed with remnants of what I would empty into the trash. But as I looked at the pile of gray, my mind knew what was also there. Riley. Pieces of my 11-year-old boy’s skin, hair, and probably a few nail clippings that had fallen to the floor. 

You see, I moved his bed today. It was the first time I moved it since we put it in his bedroom nine years ago. And I had not vacuumed underneath it since then. For the last three-and-a-half years, he has been sharing a room with his baby sister. She’s running out of room in her crib at the end of his bed, and soon she’ll be using his bed with the duvet patterned with green circles. In preparation for the change, the room needed cleaning. HIs backpack is still under his desk. His water bottle is still tucked inside with the remains of the water he took to school on his last day of school. His daily calendar on his side table still says October 8, 2014. 

After he died, I left everything in its place, yet over the years, his room has also become a dumping ground for all of the things that I have collected, for all of the things people have given us. There is a giant green paper lantern from his memorial at the elementary school he attended for five years. There is a jar of post-it notes with words of kindness written on them from his classmates from the first anniversary of his death. There are rolled up banners in the closet and t-shirts hanging on the walls from the charity runs that his classmates organized each year until they graduated from high school. 

His bed still has the sheets that he slept on the last night he slept in this house. His pillow case has not been washed. His beloved stuffed penguins wait for his return, their black heads resting on his pillow. 

As I moved the bed frame, I was confronted with the piles of his art from school that I’d hoarded over the years, yet never hung on the walls to enjoy. Each precious piece made during school art classes encased in folders made from large pieces of construction paper. They are all priceless, irreplaceable. Part of me doesn’t want to open those folders because once I do, I will have seen every last piece of art that he made. It’s possible that there won’t be any other opportunities to see things he’s made that I’ve never seen before. 

The room was left in disarray when I went to pick the three year old up from preschool. Seeing all of Riley’s stuffed animals in a big pile on the floor, she said, “Move all of this stuff out of here.” I hadn’t expected that request. “No, I’m just cleaning. They will go back on the bed once it’s made again.” She asked why. “Because you’re still sharing a room with Riley and these are his things.”

She was satisfied with my reply as I closed the door for her nap time. The Dyson is still full of dust, though, and I like imagining the physicalness of Riley. His hand in mine. His arms around me and mine around his torso. His weight in my lap. The shape of his ears, the boney boy knees, his nibbled cuticles. Along with a few hair clippings, some baby teeth, and his ashes, there isn’t anything else. LIke the art that I’m apprehensive about looking at, knowing there won’t be more in the future, I’m apprehensive about emptying the dust into the trash. It feels like a last gift. Or an unexpected hello from my boy. 

I will empty the canister when she wakes. In the meantime, I will open the pouch with his hair in it, brush it against my cheek, and try to remember how it felt all those years ago when I hugged him, his mop in my face and in my eyes. Exactly where it should be, even though if he were still alive today, it would likely be my hair in his face and my cheek on his chest as the boy would have grown into a man.

Sunday, February 13, 2022

Grief and a success

    After several failed attempts, I finally ended up walking with Auditor Friend. Her daughter was one of Riley’s classmates starting back in kindergarten, and her family has donated copious amounts of time planning and organizing the Riley Run each year. Aside from hashing out details for the annual charity runs in her kitchen a few times, I barely knew this woman prior to our walk. I was looking forward to knowing her more.
    We marched from her house along familiar streets in our neighborhood. They were streets that held the weight of hundreds of runners wearing green in honor of Riley over the years. We talked about her daughter who would soon be heading to college. We talked about what it was like to see Riley’s peers heading to college. We talked about lots of other things, like her son, where she grew up, how she met her husband, what she dreams about doing after her youngest launches in a few years. Then we circled back to life in Tahoe. I told her the story of my neighbors who invited us to their party. I told her about how I wait for people to hurt me, knowing they usually do.
    She listened patiently, then after a few moments, “Would it be okay if I offered a suggestion.” I said yes. “Is there a way you can tell people ahead of time, so that you aren’t waiting for them to hurt you?” she asked cautiously.
    For so many years, it was hard to even say out loud that my son had died. The words like broken glass in my mouth, I said it only when it was required. The thought of saying it preemptively felt like putting the glass in my mouth.
    Or would it be?
    Shortly after that walk, in an attempt to meet my 10th-grader’s friend’s moms, I invited two strangers over for sangria on a Friday night when my son was inviting his friends over for a movie. For safety, I also invited my son’s stepmom, whom I adore and another friend, who is another mom in this circle.
    I decided to try out Auditor Friend’s suggestion.
    “I have sweaty palms as draft this message, but it’s important for me to let you know ahead of time that my son Riley, Carter’s older brother, died when he was 11. Carter was 8 at the time. I don’t know who knows this and who doesn’t know this, and when we talk about our families on Friday, I will talk about Riley. And I might cry. I’m telling you this so that it’s not a surprise if you didn’t know.
    This is my first attempt to temper the social anxiety that has come alongside grief by being proactive. For nearly seven years, I’ve silently panicked while waiting for it to inevitably come up. But after talking with a friend the other week, she helped me come up with this plan to see if this is a better approach. Sorry for the long explanation and for understanding. I hope I haven’t scared you off.”
    And I didn’t scare her off. Rather, it opened the door for a calming exchange about Riley. “I know about Riley, and I think of him whenever I walk by his memorial on Pulgas Ridge. I just wasn’t sure if it was appropriate to bring him up. I am glad you did and are, and by all means, cry on Friday! I’ll be right there with you.”
    When she arrived that Friday night, I gave her a big hug. She hugged me back and gave me flowers. It was better than I had hoped. I go back to what my stepdaughter told me a few years ago… “There are probably a lot more safe people out there, if you’d only give them the chance.” Now I just need a crystal ball to know which are which. 

Thursday, January 20, 2022

Grief and innocent neighbors

For most of the past year, we’ve been living in Tahoe. We ran away just like so many others when covid sent us all inside, making it socially acceptable to stay away from people. We’ve been wanting to run away since Riley died more than seven years ago.
    As hot summer nights turned into cooler autumn breezes, there was an invitation from our Tahoe neighbor. We'd seen him in the yard every so often. We'd exchange niceties. And now there was an invitation. He was throwing a surprise birthday party for a friend. We didn’t know the friend, we barely knew the neighbor. But on the night of the party, we took a giant jug of sangria and a bag full of ice cubes in the shape of teeth to their backyard which connects with our yard. There were chips and salsa. A net was set up in the yard. Other neighbors were playing badminton. There was another toddler with a truck. More guests appeared, more sangria was poured, and the tightening in my chest began. Then the guest of honor was surprised with a dozen people he didn’t know.
    Eventually it was the baby’s bedtime. I volunteered to take her home and get her into bed. I appreciated the break – being in a group is like being surrounded by fire because someone would eventually ask how many kids we have. It seems to be such an innocent question. And our neighbors had clearly seen the teenagers coming and going. Just never all at once in a way that would make counting them up easy. Not that you could count up how many kids we have just by looking at the ones standing and breathing in front of you. My family isn’t that straightforward.
    After she was settled, I went back to the party and sat next to my husband. The group was smaller now. The guest of honor, his sister, our neighbors. I pushed my hands into my legs that rumbled with anticipation, trying to lessen the rumbling. I swallowed more gulps of sangria. My husband rubbed my back, then looped his arm through mine. I waited for this group of innocent people to hurt me. They always do. Not intentionally, but it hurts just the same.
    “So, how many kids do you have over there?” he asked. And there it was.
    I went with the line I’d learned in my bereaved parent support group. “Well, for most people, that’s an easy question, but in my family, it’s more complicated,” I stumbled. “We have four big kids, but my 11-year-old son died seven years ago. So we have three living kids, plus the baby,” I managed as I wiped tears from my cheeks.
    Wide eyes stared, unsure of what to say when confronted with grief. I’m always good at ruining fun with my reality. Then after a moment, our neighbor broke the silence with, “So you guys want some more sangria?” Everyone said yes, except me. I stayed for another few minutes before excusing myself to be closer to the baby. Adam decided to join me. We said goodnight and walked back home. And just like that, I didn't ever want to see them again.

Tuesday, February 23, 2021

Grief and the woman on the phone

My email signature
There was a woman’s voice on the other end of the call. Far away from Lake Tahoe, somewhere in Florida. I figured our connection was a mistake of the internet as I looked for a contractor to replace some doors at our house. But she was part of the call center, probably working from home during the pandemic. She was helpful and offered to set up an appointment for someone to come take a look, take some measurements. The appointment was set, then after talking it over with my husband, we changed our minds. We wanted a local shop with a showroom, where we could go look at doors and feel the difference between wood and fiberglass. I emailed to let her know that I called the Sacramento office and canceled. That would have been the end of it, but she followed up.

“On another note; I noticed the bottom of your email.

My heart sank.
I am so, so sorry for your loss.
My heart goes out to you.
No parent should ever lose a child.

My prayers go out to you and your family.
May little Riley rest in peace until you meet again.”

This woman in Florida is the first person to ever respond or even mention the words that finish every single email that I have sent for more than six years. The first time. In more than six years. I've often wondered if the words were really attached to my messages and I've looked at my sent mail to verify its existence. And there it is. Every. Single. Time.

As time goes by there are fewer and fewer times when people ask about him and fewer and fewer opportunities for me to talk about him. I responded with a thank you. I thanked her for bringing him into the moment for me. I thanked her for taking a chance. I told her that Riley loved maps and baseball and Tabasco. He loved telling jokes, the color green, and sitting in my lap. I told her that he was the love of my life. And while her email brought fresh tears to my eyes, I assured her that her message did not make me sad.

Silence is what hurts. 
Acknowledgement is what heals. A bereaved parent needs a lot of acknowledgement. We need to hear our children's names said aloud. Or typed in an email. This faraway woman helped my broken heart feel slightly less broken. Her note definitely did not make me sad or remind me that Riley has died. I'm acutely aware of his death and absence practically every minute of every day. Rather, her mentioning him made him alive. And I thanked her for her the gift.

Monday, February 01, 2021

Grief and finding unlost

I sometimes try to count the days that Riley has been dead. Sometimes they are on the tip of my tongue. Sometimes they are shouted into my head over and over like an alarm, blasting without an off button. Sometimes I walk the streets and imagine he is walking beside me. Sometimes I can only see him lying in the hospital bed cut and stitched and bleeding because the stitches can’t stop the bleeding. When I see the tears drip from his eyes with the ventilator preventing him from telling me how much it hurts, it burns. An all over burn that starts in my forehead and simmers through each of my limbs until they stop working and I crumple onto the floor again. Sometimes he is the sun blinding me with a beautiful dream that I once had. It’s about a baby who came into my life and made me a mother when I was just 29 years old. He was perfect and imperfect and no amount of love or medical attention could make the imperfections go away. This dream is punctuated by months of nightmares all seemingly separated into years. This beautiful imperfect and perfect boy smiled and laughed and read books and arranged elaborate traffic jams on the coffee table. He learned to walk and then when a long hospitalization took that ability away, he learned to walk again. He learned to ride a bike the summer before he started kindergarten. He made friends and loved school, but struggled with PE and came up with excuses as to how to avoid participating. He was thirsty, he said. Again and again he’d get a drink of water.

Today I know that it's been six years and three months and 12 days since he died, but I cannot tell you what time of day he exhaled for the last time. I don’t know how I cannot know that detail. I remember the day, the hours of removing life support bit by bit hoping that his heart would be able to beat on its own, enough to give him more months and more years of being a son, a brother, a friend, a classmate, a teammate.

It’s been all of these years and yet the pain is just under the skin like a bruise that can be felt at any moment. I just watched the trailer for a movie being released in February. It’s called Land. This new movie was advertised to me when I was searching for a mushroom risotto recipe. The protagonist's hard, lost face reminded me of mine. So I clicked the link and was taken to the movie trailer's web site. I clicked play. She had moved to a remote cabin, presumably to escape the pain of grief’s jaws around her heart. There were flashes of a child, flashes of a former life. Another character finds her freezing and starving and eventually asks her what she wants her life to look like now, in the aftermath of the grief. 

His question was a sucker punch to my own existence. It is a question I started asking myself a few months ago. I asked myself how I would change my life. If I could make any change, what would it be. How would it look? Who would I be? Because I don’t know who I am, even though there are many labels that give names to characteristics that make up parts of me. Wife. Mother. Reader. Writer. Friend. Person who likes walking. Person who has a dog. Person who drives a minivan. I had stopped going to my moving meditation dance class long before covid took everything away. But sometimes I dance in the kitchen. But who do I want to be and what do I want my life to look like. I have no idea. Anything I choose to do, any changes I make to my life will be made in a world without Riley. I don’t want to change in any way that he wouldn’t recognize me. Don’t put that on me, he whispers into my ear. I will always recognize you no matter what you are doing or where you are.

Riley isn’t coming back into my life in the way that I so desperately want him to be in my life. He is so present, in nearly all of my thoughts every single day. I can take him anywhere I go, but I have to choose where to go. The days become nights; the nights become days. The hair I chopped off after he died has grown long again. Time continues. The calendar swings from one calendar page to the next. Old calendars are replaced with new ones. The years come and go. I am the same. So much of the time I just want to go backwards. But the backwards I want to return to has an alternate ending. One where he is alive and thriving. I am lost without him. And yet, I am the only one who can make me unlost.